EPID-BULL EPID-BULL: Epidermis Bullosa Online Support Group
You should insert a short (4-5 line) description of your list here
KELLY-TEAM Kelly's Team from the Kelly Davidson Foundation
www.kellysteam.org
GEN-ETHICS The Human Genome Project: Ethical, Legal & Policy Issues
This is a list to discuss the ethical, legal and policy implications of the Genome Project and its clinical applications.
Appropriate topics will include, among others:
- Evolving legislative solutions to genetic discrimination, - Expected changes in health care delivery as a result of the growing body of knowledge on the genetic basis of medical disorders, including the possible influence on minorities and the refusal to cover expansive genetic therapies. - Influence of the genetic discoveries on the deterministic view of Medicine and the possible remedies against this trend.
While case studies related to clinical applications could be mentioned, ANY PARTICULARS or PERSONAL DATA should NOT be discussed on this public forum.
Participants should have an active interest in basic scientific research, clinical applications of genetic discoveries or in genetic counseling.
This list is part of a group of lists sponsored by ACOR, the Association of Cancer Online Resources (http://www.acor.org).
For more information on this list, contact: GEN-ETHICS-Request@LISTSERV.ACOR.ORG
********************************************************************** To find out more about this list, send your questions to:
The EC-GROUP has moved to a new home. Come to our new web address and request an invitation to join: https://www.smartpatients.com
The list archives are available to subscribers at: HTTP://listserv.acor.org/archives/ec-group.html
E-PATIENTS The e-Patients Workgroup
The e-Patients Workgroup
HEM-ONC-FR Hem-Onc-FR Liste Francophone pour tous les cancers du sang
SOYEZ BIENVENU A HEM-ONC-FR
Pourquoi avoir créé la liste HEM-ONC-FR ?
Avant de lancer HEM-ONC-FR, ACOR a créé plus de 90 listes anglophones. Chaque liste,spécialisée pour un type de cancer spécifique,fournit le support et le transfert de l?information médicale nécessaire pour améliorer la qualité de vie, ainsi que pour parfois, augmenter ses chances de survie lorsqu?on souffre d?un cancer rare ou diagnostiqué à un stade avancé. Les listes anglophones permettent actuellement d?offrir des services à près de 38.000 patients,avec un nombre toujours croissant de grands spécialistes prèts à apporter une information médicale de qualité.
Il est temps de créer un environnement similaire pour les patients francophones.
A qui est destinée HEM-ONC-Fr ?
Cette liste francophone est crée de manière à faciliter le support et l?accès à l?information pour les gens concernés ? de près ou de loin ? par les cancers du sang: les patients, bien évidemment, leur famille, leurs proches, le personnel soignant, qu?il soit médical ou paramédical ainsi que les scientifiques travaillant sur la recherche.
De quoi y parle t?on ?
Parmi les nombreux sujets possibles de discussion sur HEM-ONC-Fr, on peut citer l?évolution d?un traitement, ses effets secondaires, sa vie de tous les jours, ses espoirs, ses angoisses, ses tuyaux permettant d?améliorer tel ou tel problème dû aux traitements, ainsi que la terreur que chacun ressent lors du diagnostic. N?oublions pas non plus les problèmes d?emploi, d?assurance vie et la vaste gamme de problèmes sociaux pouvant être associés à la maladie. HEM-ONC-FR devrait être aussi utilisée pour transmettre les nouvelles découvertes sur le cancer et les traitements expérimentaux.
Cependant le but premier de la liste est d?apporter par l?expérience personnelle de chacun des abonnés, information et soutien au patient et à ses proches. Le cancer reste un ensemble de maladies dangereuses, soignées par des traitements ayant souvent des effets secondaires importants. L?aspect psychologique d?un diagnostic de cancer est souvent sous-évalué,même par le médecin qui l'a fait. Malgré la disponibilité de leur médecin traitant, les patients peuvent se sentir isolés et incompris par leur proches et les gens avec lesquels ils travaillent.
Comment poster un message sur HEM-ONC-fr ?
En l'envoyant à HEM-ONC-fr@listserv.acor.org
Il sera lu par tous les abonnés de la liste.
Comment répondre à un message reçu :
en cliquant sur la touche "répondre à" de votre programme d'email et en vérifiant TOUJOURS que HEM-ONC-fr soit dans le champ des destinataires et en changeant le sujet pour qu'il corresponde à celui de votre message.
Comment se désabonner :
en envoyant un message à : listserv@listserv.acor.org
en écrivant dans le corps du message : unsubscribe HEM-ONC-fr
An ACOR List, part of a family of Medical lists, and a part of the For more information, please contact the list owners at address HEM-ONC-FR-Request@listserv.acor.org or review the past archives of the list at http://www.acor.org (main Medinfo Web Site).
HISTORY: 09/04/99 - Begin List [gf] 09/05/99 Add GrannyBarb abd PapyRon as owners [bbl] ***************************************************************************
HEALTH-SEEKERS Online Health Seekers: Facts and Theories
Online Health Seekers: Facts and Theories
L-SARCOMA The liposarcoma (cancer) Online Support Group
L-SARCOMA is an unmoderated discussion list for patients, family, friends, researchers, and physicians, to discuss clinical and nonclinical issues and advances pertaining to liposarcoma, a rare form of cancer.
This includes patient experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices.
HEALTH_2_0 Health 2.0: Transforming health care by maximizing the wisdom of e-patients
Health 2.0: Transforming health care by maximizing the wisdom of e-patients
E-SELF-HELP Electronic Self Help Communities
Electronic Self Help Communities
FACING-AHEAD F-Ahead Facing-Ahead: Helping to face the death of a loved one
Description: FACING-AHEAD is designed to provide support for those who are facing the death of a loved one as well as those who have experienced the death of a loved one. You will find support and help from others who are in the same situation. To find out more about this list, send your questions to:
FACING-AHEAD-Request@listserv.acor.edu
This list is part of a group of lists co-sponsored by ACOR, the Association of Cancer Online Resources and St. Johns University.
An ACOR List, part of a large family of Oncology lists. This list provides various kinds of support relating to Li-Fraumeni Syndrome. For more information, contact LI-FRAUMENI-Request@listserv.acor.org.
This list is sponsored by the Association of Cancer Online Resources, Inc. http://www.acor.org
HEM-ONC HEM-ONC Hematological Malignancies Support List
An ACOR List, part of a large family of Oncology lists. This list provides various kinds of support relating to hematological malignancies: lymphoma, leukemia, multiple Myeloma. For more information, contact HEM-ONC-Request@listserv.acor.org.
This list is sponsored by the Association of Cancer Online Resources, Inc. http://www.acor.org
An ACOR List, part of a large family of Oncology lists. This list provides various kinds of support relating to hairy cell leukemia. For more information, contact HAIRY-CELL-Request@listserv.acor.org.
This list is sponsored by the Association of Cancer Online Resources, Inc. http://www.acor.org
FAITH FAITH A Discussion List about Faith and Coping with Cancer
An ACOR List, part of a large family of Oncology lists. This list provides an open and non-denominational forum to discuss the importance of faith in dealing with cancer, either as a patient, a family member or a health professional. For more information, contact FAITH-Request@listserv.acor.org.
This list is sponsored by ACOR the Association of Cancer Online Resources, Inc. http://www.acor.org ***************************************************** ********************************************************************
FAITH is an unmoderated discussion list for family, friends, researchers, and physicians, You may reach the managers at: FAITH-request@listserv.acor.org
The list is archived at http://listserv.acor.org or may be obtained by a listserv request; to use the listserv mechanism, send the command 'index FAITH' to listserv@listserv.acor.org and you will get both a list of FAITH available files and logs, and also instructions on how to use them.
HISTORY: 03/04/98 - Create List - gfrydman@acor.org ********************************************************************
*****************
FLCS Finger Lakes Cancer Support Online Group
An ACOR List, part of a family of Oncology lists.
DOLOR-FORO DOLOR-FORO
************************************************************************* ************************************************************************* * History * Create List 06/04/30 * Added Marion 05/07/2007
GENOMICS The GENOMICS Discussion Group
*********************************************************************** For more information, send the command 'info GENOMICS' to the address: LISTSERV.ACOR.ORG (or to any listserv, actually).
You can always reach the owners at: GENOMICS-request@LISTSERV.ACOR.ORG
The list is archived at http://www.ACOR.ORG or can be obtained by a listserv request; to use the listserv mechanism, send the command 'index GENOMICS' to listserv and you will get both a list of all available files and logs, and also instructions on how to get them. ******************************************************************** The following is the list of non-concealed subscribers. To review your own subscription options, send the command "query GENOMICS" to the listserv address LISTSERV.ACOR.ORG. To leave the list send the command "unsub GENOMICS" to the listserv address. To resubscribe, send the command "subscribe GENOMICS FirstName LastName" to the listserv address.
Total number of users subscribed to the list:
DESMOID The Desmoid Tumor eCommunity
*********************************************************************** DESMOID is an unmoderated discussion list for parents, sibblings, friends, researchers, and physicians, to discuss clinical and nonclinical issues and advances pertaining to Desmoid Tumors (Aggressive Fibromatosis). This includes patient experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices. This list is part of a group of lists sponsored by ACOR, the Association of Cancer Online Resources (http://www.acor.org).
You can always reach the owners at: DESMOID-request@LISTSERV.ACOR.ORG
The list is archived at http://listserv.acor.org/archives/desmoid.html ******************************************************************** To subscribe, mailto: desmoid-subscribe-request@listserv.acor.org
COLON Colorectal Cancer Discussion List
*********************************************************************** An ACOR List, part of a large family of Oncology lists. This list provides various kinds of support relating to Colon Cancer. For more information, contact: COLON-Request@listserv.acor.org.
This list is sponsored by the Association of Cancer Online Resources, Inc. http://www.acor.org ***********************************************************************
DESCRIPTION: A mailing list to discuss Colorectal Cancer. Anyone may join who has colon, rectal or anal cancer or wants to support people living with colorectal cancer
To see the files associated with this list, send this message:
To: listserv@listserv.acor.org Subject: - blank - Message: index Colon
The list is archived both on the listserv host
http://listserv.acor.org/archives/colon.html
and at a web site:
http://www.medinfo.org/listserv.html
Finally, if you have any problems you cannot resolve by using the above information, you can always write to the list managers at:
Colon-Request@listserv.acor.org
HEAD-NECK-ONC The HEAD & NECK Cancers Online Support Group
*********************************************************************** ******************************************************************** HEAD-NECK-ONC is an unmoderated discussion list for patients, family, friends, researchers, and physicians, to discuss clinical and nonclinical issues and advances pertaining to Head &-Neck Cancers.
This includes patient experiences, psychosocial issues, new research, clinical trials, alternative therapies and discussions of current treatment practices.
This list is part of a group of lists sponsored by ACOR, the Association of Cancer Online Resources (http://www.acor.org)) ***********************************************************************
For more information, send the command 'info HEAD-NECK-ONC' to the address: LISTSERV.ACOR.ORG (or to any listserv, actually).
You can always reach the owners at:
HEAD-NECK-ONC-request@LISTSERV.ACOR.ORG
The list is archived at http://www.ACOR.ORG or can be obtained by a listserv request; to use the listserv mechanism, send the command 'index HEAD-NECK-ONC' to listserv and you will get both a list of all available files and logs, and also instructions on how to get them. ******************************************************************** ******************************************************************** The following is the list of non-concealed subscribers.
CPCOS Cancer Patients Christian Online Support Group
*********************************************************************** ******************************************************************** CPCOS is an unmoderated discussion list for patients, family and friends, to provide an area of Christian Communication, Encouragement and prayer, particularly for supporting Christians diagnosed with cancer.
For more information, send the command 'info CPCOS' to the address: listserv@acor.org (or to any listserv, actually).
You can always reach the owners at: CPCOS-request@LISTSERV.ACOR.ORG
The list is archived at http://www.ACOR.ORG or can be obtained by a listserv request; to use the listserv mechanism, send the command 'index CPCOS' to listserv and you will get both a list of all available files and logs, and also instructions on how to get them. ********************************************************************
HISTORY: 09/09/98 Charles as owner - GRA Add initial owner: ********************************************************************
Members of the kidney cancer community at Smart Patients provide help andadvice for patients and caregivers dealing with all types of renal cell carcinoma (RCC) including clear cell, papillary and chromophobe.
The list is archived at http://LISTSERV.ACOR.ORG/archives/kidney-onc.html Note: You must be subscribed to the Kidney-Onc list in order to view the archives.
******************************************************************** JP-NET is an unmoderated discussion list for Jewish patients, family, friends, and physicians, to discuss clinical and nonclinical issues and advances pertaining to cancer. Most of the families are bereaved parents. This includes patient experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices. This list is part of a group of lists sponsored by ACOR, the Association of Cancer Online Resources (http://www.acor.org).
For more information, send the command 'info JP-NET' to the address: listserv@acor.org (or to any listserv, actually).
You can always reach the owners at: JP-NET-request@LISTSERV.ACOR.ORG
The list is archived at http://www.ACOR.ORG or can be obtained by a listserv request; to use the listserv mechanism, send the command 'index JP-NET' to listserv and you will get both a list of all available files and logs, and also instructions on how to get them. ********************************************************************
HISTORY: 10/30/99 - Create List - ******************************************************************** ********************************************************************
The following is the list of non-concealed subscribers. To review your own subscription options, send the command "query JP-NET" to the listserv address listserv@acor.org. To leave the list send the command "unsub JP-NET" to the listserv address. To resubscribe, send the command "subscribe JP-NET FirstName LastName" to the listserv address.
HEMANGIOMA Hemangioma Information and Support Group
******************************************************************** HEMANGIOMA is an unmoderated discussion list for patients, family, friends, researchers, and physicians, to discuss clinical and nonclinical issues and advances pertaining to hemangioma.
This includes patient experiences, psychosocial issues, new research, clinical trials, alternative therapies and discussions of current treatment practices.
This list is part of a group of lists co-sponsored by ACOR, the Association of Cancer Online Resources (http://www.acor.org)
The following is the list of non-concealed subscribers. To review your own subscription options, send the command "query KIDNEY-ONC" to the listserv address LISTSERV.ACOR.ORG. To leave the list send the command "unsub KIDNEY-ONC" to the listserv address. To resubscribe, send the command "subscribe KIDNEY-ONC FirstName LastName" to the listserv address.
Total number of users subscribed to the list:
GYN-ONC The Gynecological Cancers Online Support Group
******************************************************************* The Gynecological Cancers Online Support Group welcomes persons dealing with cancers of the uterus, cervix, fallopian tubes, vagina, and vulva. People looking for specific information and support for ovarian cancer should first subscribe to the OVARIAN list but are also welcome here. GYN-ONC is an unmoderated discussion list for patients, family, friends, researchers, and physicians, to discuss clinical and nonclinical issues and advances pertaining to Gynecological cancers. This includes patient experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices. This list is part of a group of lists sponsored by ACOR, the Association of Cancer Online Resources (http://www.acor.org)
For more information, send the command 'info GYN-ONC' to the address: LISTSERV.ACOR.ORG (or to any listserv, actually).
You can always reach the owners at: GYN-ONC-request@LISTSERV.ACOR.ORG
The list is archived at http://www.ACOR.ORG or can be obtained by a listserv request; to use the listserv mechanism, send the command 'index GYN-ONC' to listserv and you will get both a list of all available files and logs, and also instructions on how to get them. ********************************************************************
The following is the list of non-concealed subscribers. To review your own subscription options, send the command "query GYN-ONC" to the listserv address listserv@listserv.acor.org To leave the list send the command "unsub GYN-ONC" to the listserv address. To resubscribe, send the command "subscribe GYN-ONC FirstName LastName" to the listserv address.
Total number of users subscribed to the list:
GTD Gestational Trophoblastic Disease (Cancer) Support List
******************************************************************* The Gestational Trophoblastic Disease Online Support Group welcomes persons dealing with this type of cancer. Another list, GYN-ONC deals with cancer of the uterus, cervix, fallopian tubes, vagina, and vulva. GTD is an unmoderated discussion list for patients, family, friends, researchers, and physicians, to discuss clinical and nonclinical issues and advances pertaining to Gestational Trophoblastic Disease. This includes patient experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices. This list is part of a group of lists sponsored by ACOR, the Association of Cancer Online Resources (http://www.acor.org)
For more information, send the command 'info GTD' to the address: LISTSERV.ACOR.ORG (or to any listserv, actually).
You can always reach the owners at: GTD-request@LISTSERV.ACOR.ORG
The list is archived at http://www.ACOR.ORG or can be obtained by a listserv request; to use the listserv mechanism, send the command 'index GTD' to listserv and you will get both a list of all available files and logs, and also instructions on how to get them. ********************************************************************
HISTORY: 4/03/2000 - Create List - gfrydman@acor.org (gjf) ******************************************************************** ********************************************************************
The following is the list of non-concealed subscribers. To review your own subscription options, send the command "query GYN-ONC" to the listserv address listserv@sjuvm.stjohns.edu. To leave the list send the command "unsub GTD" to the listserv address. To resubscribe, send the command "subscribe GTD FirstName LastName" to the listserv address.
Total number of users subscribed to the list: Total number of local node users on the list:
LIVER-ONC The Liver Cancer Support Group
******************************************************************** LIVER-ONC is an unmoderated discussion list for parents, sibblings, friends, researchers, and physicians, to discuss clinical and nonclinical issues and advances pertaining to Liver cancers. This includes patient experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices. This list is part of a group of lists sponsored by ACOR, the Association of Cancer Online Resources (http://www.acor.org).
The listmanagers, conscious of the limited time medical professionals can spend online, have setup this list to help those subscribers. ***********************************************************************
For more information, send the command 'info LIVER-ONC' to the address: LISTSERV.ACOR.ORG (or to any listserv, actually).
You can always reach the owners at: LIVER-ONC-request@LISTSERV.ACOR.ORG
The list is archived at http://www.ACOR.ORG or can be obtained by a listserv request; to use the listserv mechanism, send the command 'index LIVER-ONC' to listserv and you will get both a list of all available files and logs, and also instructions on how to get them. ********************************************************************
To review your own subscription options, - send the command "query LIVER-ONC" to the listserv address (listserv@acor.org). To leave the list, - send the command "unsub LIVER-ONC" to the listserv address. To resubscribe, - send the command "subscribe LIVER-ONC FirstName LastName" to the listserv address.
The following is the list of non-concealed subscribers.
LARYNX-C The Larynx Cancer Online Support Group
******************************************************************** LARYNX-C is an unmoderated discussion list for patients, parents, friends, researchers, and physicians, to discuss clinical and nonclinical issues and advances pertaining to cancer of the Larynx. This includes patient experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices. This list is part of a group of lists sponsored by ACOR, the Association of Cancer Online Resources (http://www.acor.org).
The listmanagers, conscious of the limited time medical professionals can spend online, have setup this list to help those subscribers. ***********************************************************************
*************************** Explanation of all the topics ADMIN -- help requests, procedural posts, communication from list administrator MED -- medical, including medications, symptoms, testing NEWS -- news articles and research COPE -- disease support and accommodations emotional health/wellness, general support for life issues FUN -- jokes, funny stories, etc. (Please keep the jokes to PG or PG-13.) GEN -- books, URL's, LARYNC-C chapter activities, disease PR, etc. ******************************************************************
For more information, send the command 'info LARYNX-C' to the address: LISTSERV.ACOR.ORG (or to any listserv, actually). You can always reach the owners at:
LARYNX-C-request@LISTSERV.ACOR.ORG
The list is archived at http://LISTSERV.ACOR.ORG or can be obtained by a listserv request; to use the listserv mechanism, send the command 'index LARYNX-C' to listserv and you will get both a list of all available files and logs, and also instructions on how to get them. ********************************************************************
To review your own subscription options, - send the command "query LARYNX-C" to the listserv address (LISTSERV.ACOR.ORG). To leave the list, - send the command "unsub LARYNX-C" to the listserv address. To resubscribe, - send the command "subscribe LARYNX-C FirstName LastName" to the listserv address.
The following is the list of non-concealed subscribers.
KAPOSI The Kaposi Sarcoma Online Support Group
******************************************************************** KAPOSI is an unmoderated discussion list for patients, parents, friends, researchers, and physicians, to discuss clinical and nonclinical issues and advances pertaining to Kaposi Sarcomas. This includes patient experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices. This list is part of a group of lists sponsored by ACOR, the Association of Cancer Online Resources (http://www.acor.org).
The listmanagers, conscious of the limited time medical professionals can spend online, have setup this list to help those subscribers. ***********************************************************************
For more information, send the command 'info KAPOSI' to the address: LISTSERV.ACOR.ORG (or to any listserv, actually). You can always reach the owners at:
KAPOSI-request@LISTSERV.ACOR.ORG
The list is archived at http://www.ACOR.ORG or can be obtained by a listserv request; to use the listserv mechanism, send the command 'index KAPOSI' to listserv and you will get both a list of all available files and logs, and also instructions on how to get them. ********************************************************************
To review your own subscription options, - send the command "query KAPOSI" to the listserv address (LISTSERV.ACOR.ORG). To leave the list, - send the command "unsub KAPOSI" to the listserv address. To resubscribe, - send the command "subscribe KAPOSI FirstName LastName" to the listserv address.
The following is the list of non-concealed subscribers.
INFANT-ALL Infantile ALL
******************************************************************** INFANT-ALL is an unmoderated discussion list for parents, sibblings, friends, researchers, and physicians, to discuss clinical and nonclinical issues and advances pertaining to infantile ALL. ********************************************************************** You can always reach the owners at: INFANT-ALL-Request@LISTSERV.ACOR.ORG
The list is archived at http://listserv.acor.org/archives/infant-all.html
HODGKINS Hodgkin's Lymphoma Mailing List
******************************************************************** HODGKINS is an unmoderated mailing list for the discussion of Hodgkin's Lymphoma.
This list is part of a group of lists sponsored by ACOR, the Association of Cancer Online Resources (http://www.acor.org). *********************************************************************** ***********************************************************************
For more information, send the command 'info HODGKINS' to the address: LISTSERV.ACOR.ORG (or to any listserv, actually). You can always reach the owners at:
HODGKINS-request@listserv.acor.org
The list is archived at http://listserv.acor.org or can be obtained by a listserv request; to use the listserv mechanism, send the command 'index HODGKINS' to listserv and you will get both a list of all available files and logs, and also instructions on how to get them. ******************************************************************** To review your own subscription options, - send the command "query HODGKINS" to the listserv address (listserv@listserv.acor.org). To leave the list, - send the command "unsub HODGKINS" to the listserv address. To resubscribe, - send the command "subscribe HODGKINS FirstName LastName" to the listserv address.
The following is the list of non-concealed subscribers.
HEALTH-BRIDGE HEALTH-BRIDGE: Partnerships for Quality Online Health Information Resources
******************************************************************** HEALTH-BRIDGE is an unmoderated discussion list to foster more active partnerships between health-oriented self-help online resources creators and health care professionals such as physicians, nurses, health researchers, medical librarians, social workers or representatives of Health Maintenance Organizations.
Suggested Topics of discussions include:
-- patient/health professional partnerships in the development of medical information systems.
-- The role of Internet patient forums in the delivery of health care.
-- Integrating information forums into the clinical environment (information resource centers in hospitals).
-- The electronic patient record. Privacy and ownership issues.
-- Information and Misinformation in the online patient forum. What is the impact?
This list is part of a group of lists sponsored by ACOR, the Association of Cancer Online Resources (http://www.acor.org). *********************************************************************** For more information, send the command 'info HEALTH-BRIDGE' to the address: listserv@listserv.acor.org
You can always reach the owners at: HEALTH-BRIDGE-request@LISTSERV.ACOR.ORG
The list is archived at http://www.ACOR.ORG or can be obtained by a listserv request; to use the listserv mechanism, send the command 'index HEALTH-BRIDGE' to listserv and you will get both a list of all available files and logs, and also instructions on how to get them. ******************************************************************** To review your own subscription options, - send the command "query HEALTH-BRIDGE" to the listserv address (listserv@listserv.acor.org). To leave the list, - send the command "unsub HEALTH-BRIDGE" to the listserv address. To resubscribe, - send the command "subscribe HEALTH-BRIDGE FirstName LastName" to the listserv address.
The following is the list of non-concealed subscribers.
E-SARCOMA The Ewing Sarcoma Online Support Group (cancer)
******************************************************************** E-SARCOMA is an unmoderated discussion list for patients, parents, friends, researchers, and physicians, to discuss clinical and nonclinical issues and advances pertaining to Ewing Sarcomas. This includes patient experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices. This list is part of a group of lists sponsored by ACOR, the Association of Cancer Online Resources (http://www.acor.org).
The listmanagers, conscious of the limited time medical professionals can spend online, have setup this list to help those subscribers. ***********************************************************************
For more information, send the command 'info E-SARCOMA' to the address: LISTSERV.ACOR.ORG (or to any listserv, actually). You can always reach the owners at:
E-SARCOMA-request@LISTSERV.ACOR.ORG
The list is archived at http://www.ACOR.ORG or can be obtained by a listserv request; to use the listserv mechanism, send the command 'index E-SARCOMA' to listserv and you will get both a list of all available files and logs, and also instructions on how to get them. ********************************************************************
To review your own subscription options, - send the command "query E-SARCOMA" to the listserv address (LISTSERV.ACOR.ORG). To leave the list, - send the command "unsub E-SARCOMA" to the listserv address. To resubscribe, - send the command "subscribe E-SARCOMA FirstName LastName" to the listserv address.
The following is the list of non-concealed subscribers.
GVHD The Graft Versus Host Disease Online Support Group
GVHD is an unmoderated discussion list for parents, sibblings, friends, researchers, and physicians, to discuss clinical and nonclinical issues and advances pertaining to GVHD, particularly chronic.
This includes patient experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices.
This list is part of a group of lists sponsored by ACOR, the Association of Cancer Online Resources (http://www.acor.org).
The listmanagers, conscious of the limited time medical professionals can spend online, have setup this list to help those subscribers.
******************************************************************* IBC is an unmoderated discussion list for patients and caregivers. This list is part of a group of lists sponsored by ACOR, the Association of Cancer Online Resources (http://www.acor.org).
The listmanagers, conscious of the limited time medical professionals can spend online, have setup this list to help those subscribers. ******************************************************************* ***********************************************************************
For more information, send the command 'info IBC' to the address: LISTSERV.ACOR.ORG (or to any listserv, actually).
You can always reach the owners at:
IBC-request@LISTSERV.ACOR.ORG
The list is archived at http://www.ACOR.ORG or can be obtained by a listserv request; to use the listserv mechanism, send the command 'index IBC' to listserv and you will get both a list of all available files and logs, and also instructions on how to get them. ********************************************************************
HISTORY: 10/28/2000 - Create List - gfrydman@acor.org (gjf) Add initial owner: onc-tech@acor.org Add Alexandra Andrews alex@cancerlinks.com 11/12/2001 Add Anne Preston 09/04/2007 Remove Anne Preston ********************************************************************* ********************************************************************* To review your own subscription options, - send the command "query IBC" to the listserv address (listserv@acor.org). To leave the list, - send the command "unsub IBC" to the listserv address.
IRESSA-NSCLC Discussion of Iressa used for Non-Small Cell Lung Cancer
******************************************************************* ******************************************************************** IRESSA-NSCLC is an unmoderated discussion list for patients, family, and friends to discuss clinical and non-clinical issues and advances pertaining to using Iressa for Non Small Cell Lung Cancer. This includes patient experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices. This list is part of a group of lists co-sponsored by ACOR, the Association of Cancer Online Resources (http://www.acor.org).
For more information, send the command 'info IRESSA-NSCLC' to the address: listserv at LISTSERV.ACOR.ORG
You can always reach the owners at: IRESSA-NSCLC-request@LISTSERV.ACOR.ORG
The list is archived at http://listserv.acor.org or can be obtained by a listserv request; to use the listserv mechanism, send the command 'index IRESSA-NSCLC to listserv and you will get both a list of all available files and logs, and also instructions on how to get them.
HISTORY: 2/18/2002- Start List [gjf] 2/20/2002 - Add Karen Parles listowner {set} 2/20/2002 - Add Lorraine listowner (set) 4/10/2002 - Add Sharon Thronberry (lmj) 2/11/2003 - Add Christine Quiriy (lmj) 2/19/2003 ? mod config to cease LO approval of subs (lmj) 2/24/2003 - remove editor keyword for review purposes (lmj) 2/24/2003 - set quiriy as primary LO for review posts (lmj) 1/26/2004 - add Eric Stockel as co-lo with 2nd addr quiet (lmj) 3/12/2004 - make Eric editor in Christine's absence (lmj) 3/12/2004 - add editor/moderator keywords for cycling reviews among 3 LOs (lmj) 12/29/2004 - add estockel new address and remove old (lmj) 5/21/2006 - temp. remove quiriy@verizon.net from moderatorlist (lmj) 7/06/2006 - add quiriy back to moderator list (cq) 7/31/2006 - update estockel address in moderator list (cq) 10/23/2006 - remove old estockel address as owner (es) 11/02/2009 - replaced deprecated html language command (cq) 11/02/2009 - temp change to autodelete, added manual (cq) 08/15/2014 - remove quiet from es second address (es)
************************************************************************* To review your own subscription options, - send the command "query IRESSA-NSCLC" to the listserv address (listserv at LISTSERV.ACOR.ORG) To leave the list, - send the command "unsub IRESSA-NSCLC" to the listserv address. To resubscribe, - send the command "subscribe IRESSA-NSCLC FirstName LastName" to the listserv address.
The following is the list of non-concealed subscribers.
FAP-GS Familial Adenomatous Polyposis & Gardner Syndrome Support Group
******************************************************************* ******************************************************************** FAP-GS is an unmoderated discussion list for patients, family, friends, researchers, and physicians, to discuss clinical and nonclinical issues and advances pertaining to FAP (Familial Adenomatous Polyposis) and GS (Gardner's Syndrome). This includes patient experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices. This list is part of a group of lists co-sponsored by ACOR, the Association of Cancer Online Resources (http://www.acor.org).
For more information, send the command 'info FAP-GS' to the address: LISTSERV.ACOR.ORG (or to any listserv, actually).
You can always reach the owners at: FAP-GS-request@LISTSERV.ACOR.ORG
The list is archived at http://www.ACOR.ORG or can be obtained by a listserv request; to use the listserv mechanism, send the command 'index LUNG-ONC' to listserv and you will get both a list of all available files and logs, and also instructions on how to get them. ********************************************************************
HISTORY: 10/1/00 - Create List - gfrydman@acor.org (gjf) ********************************************************************
To review your own subscription options, - send the command "query FAP-GS" to the listserv address (LISTSERV.ACOR.ORG). To leave the list, - send the command "unsub FAP-GS" to the listserv address. To resubscribe, - send the command "subscribe FAP-GS FirstName LastName" to the listserv address.
The following is the list of non-concealed subscribers.
L-M-SARCOMA The leiomyosarcoma __cancer__ Online Support Group
******************************************************************* ******************************************************************* L-M-SARCOMA is an unmoderated discussion list for patients, family, friends, researchers, and physicians, to discuss clinical and nonclinical issues and advances pertaining to leiomyosarcoma, a rare form of cancer.
This includes patient experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices. This list is part of a group of lists co-sponsored by ACOR, the Association of Cancer Online Resources (http://www.acor.org) ******************************************************************* For more information, send the command 'info L-M-SARCOMA' to the address: listserv@LISTSERV.ACOR.ORG.
You can always reach the owners at: L-M-SARCOMA-request@LISTSERV.ACOR.ORG
The list is archived at http://listserv.acor.org
HISTIOCYTOSIS Langerhan's Cell Histiocytosis (also known as Histiocytosis X) eCommunity
******************************************************************* ******************************************************************* HISTIOCYTOSIS is an unmoderated discussion list for patients, family, friends, researchers, and physicians, to discuss clinical and nonclinical issues and advances pertaining to HISTIOCYTOSIS, a rare syndrome. This includes patient experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices. This list is part of a group of lists co-sponsored by ACOR, the Association of Cancer Online Resources (http://www.acor.org) ******************************************************************* For more information, send the command 'info HISTIOCYTOSIS' to the address: LISTSERV.ACOR.ORG (or to any listserv, actually). You can always reach the owners at: HISTIOCYTOSIS-request@LISTSERV.ACOR.ORG
The list is archived at http://www.ACOR.ORG or can be obtained by a listserv request; to use the listserv mechanism, send the command 'index VHL' to listserv and you will get both a list of all available files and logs, and also instructions on how to get them. ********************************************************************
CTCL-MF-PARENTS Parents of Children with Cutaneous T-Cell Lymphoma
********************************************************* This list primarily is for parents of children who have been diagnosed with CTCL to discuss information pertaininng to Cutaneous T-Cell Lymphoma/Mycosis Fungoides. It includes patient experiences and support as well as information on new research, clinical trials and discussions of current treatment practices. This list will be very small as CTCL in children is rare. Participants may also want to join the CTCL-MF list to receive more research information on the disease.
Information posted to this list is not intended to replace or give any medical advice. This list is free and run by volunteers.
********************************************************* This list is part of a group of lists sponsored by ACOR, the Association of Cancer Online Resources (http://www.acor.org).
The listmanagers, conscious of the limited time medical professionals can spend online, have setup this list to help those subscribers. ***********************************************************************
CTCL-MF CTCL/Mycosis Fungoides information and support
********************************************************* This list is for patients, family, friends, researchers and physicians to discuss information pertaininng to Cutaneous T-Cell Lymphoma/Mycosis Fungoides. It includes patient experiences and support as well as information on new research, clinical trials and discussions of current treatment practices. Information posted to this list is not intended to replace or give any medical advice. This list is free and run by volunteers.
********************************************************* This list is part of a group of lists sponsored by ACOR, the Association of Cancer Online Resources (http://www.acor.org).
The listmanagers, conscious of the limited time medical professionals can spend online, have setup this list to help those subscribers. *********************************************************************** For more information, send the command 'info CTCL-MF' to the address: listserv@LISTSERV.ACOR.ORG
You can reach the owners at: CTCL-MF-request@LISTSERV.ACOR.ORG
The list is archived at http://LISTSERV.ACOR.ORG ********************************************************************
